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Tahli Batkilin

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Here is a little something about my journey: 
 

It all started during lockdown in 2020 with a little rash and itchy skin. I put it down to sitting on the sand on the beach and being bitten. Once the rash disappeared I developed a dry persistent cough.

I was homeschooling 2 kids, running my business from home and just trying to survive lockdown number who knows what! I eventually tried to see my GP for the cough but didn’t get very far as it was a symptom of COVID so nobody wanted to see me. 

I persisted as I knew something wasn’t right, I was given a chest X-ray followed by a CT scan and was told to go to emergency.  

Tahli's Fundraising Page

December 17th 2020 was the day I’ll never forget, being diagnosed with Non Hodgkin Large B cell Lymphoma. The dreaded C word you never want to hear…

In that minute my whole world as I knew it turned upside down for me and my family. Telling my husband and children was awful, I felt guilty for creating fear and concern in them.

I feel angry for what it stole from me and also very grateful for the lessons I learnt along the way and the support of those around me.

I started my chemotherapy straight away, 6 rounds of R – EPOCH followed by R ICE. Unfortunately these treatments didn’t work and my next journey was a stem cell transplant but that never happened as my lymphoma grew whilst having Chemotherapy.

My next line of treatment was CAR T and I’m thrilled to say I beat it and I’m so grateful to have had the chance for CAR T**.

You find strength you never knew existed and appreciate the little things even more.

To acknowledge my experience with Lymphoma and to hopefully help others, I am joining the very important cause “Legs out for Lymphoma” to raise funds for Lymphoma Australia.

I will be walking 10,000 steps a day for 10 days during March 4-13.

** CAR T-cell Therapy  – Tahli was one of the first patients to access the Yescarta CAR T-cell program funded by the PBS. To find out more about this newer treatment and if it is right for you, go to: www.lymphoma.org.au/media/new-cart-available-therapy/

Peter Mac: www.petermac.org/news/two-major-clinical-trials-investigate-car-t-cell-therapy-b-cell-lymphoma

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Lymphoma Australia is a registered charity in Australia and its mission is to raise awareness, give support and search for a cure.

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  • About Legs Out
    • Getting your legs out for lymphoma
    • How to get your legs out
    • How getting your legs out will help
  • Take Part
    • At Work
    • At School
    • Individual/Family Group
  • Resources
  • Short Stories
  • Lymphoma Australia
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